
Ben has had a really good day. I mean a really really good day. He didn’t fuss much during the procedures and did a great job of vocalizing what he needed when he needed it. He managed to sleep rather well off and on during the day and I expect a good night tonight. His blood pressure is still higher than they would like but not bad enough to not take his arterial line out. He kept down two meals and a couple of popsicles.
He watched a lot of tv today (thank God for Disney channel!). I think that his head is permanently leaning in that direction. He hardly turned his head today at all except when he was sleeping. And of course he laughed really hard during Hank the Cowdog.
Nurse Shannon has left and Nurse John is on duty. He opened Uncle Will and Aunt Michele’s present and enjoyed the cards and pictures from his cousins. He really liked the transformer and monster truck. Papa really like the transformer too. We had to remind him that he needed to give it back to Ben before he took Grandma home.
We are waiting for another hour to pass before Daddy and Uncle Dave come on the night shift. I expect Daddy to return my BenBen in even better shape than when I left him tonight! Ben is amazing everyone with how well he is doing. Good night, sweet boy!
Kath
Sent the pic to Pam Tamburello to give to Lord of Life.
Get some rest…you guys ae awesome!
Blessings
Ann
I don’t know how you do it, Kath. Three kids all day. Man, I am pooped! Good day for the girls. They miss their mommy and daddy but they are hanging in there trying to be as strong as their mom and dad. Madie has been a big help with everything. We’re going shopping tomorrow looking for ornaments. She even offered to go to the grocery store. She said it would be ok with her if we went (I think she was bummed that we ran out of ketchup and she wants more :o) ). I know how much she loves grocery shopping. :o)
They miss all three of you! They are excited about seeing Ben updates tomorrow and a possible message from daddy. I won’t break the news of a possible visit to see you until we finalize the plans.
We are thankful everything is going well!