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Archive for September, 2013

Chris took Ben to his stress test at TCH.  This was the first big test that I didn’t take him too.  I can count on one finger how many visits that I haven’t gone on with Ben.  So it was a big deal for me to let Chris do it.  And I had to LET him.  He offered to do the whole visit without me even asking him too.  That was nice.  A bit scary. But nice.  I had to make some huge threats to Chris if he came home with one word answers.  If I asked a question, he had to respond in paragraph form.  Well, Chris went beyond the request.  He brought home a printout (they don’t hand these out usually) and a video.  Score!

The first hurdle is out of the way.  We may have our answers with this test.  Chris and I think his blood pressure on his diastolic is too low.  But we will have to wait and see what the doctor says.   That phone call should come next week.

Chris said that his test results put him above the 90% of all kids his age.  That is awesome.  He loves to run and play.  We spend more time telling him to quit running around than we do the opposite.  For the last two weeks, he has been on restriction for his physical activity.  The PE teacher was having such a hard time getting him to NOT participate that they just switched him permanently to art class until his restriction was over.   That would be our Ben Ben!

This life we lead is hard. We aren’t even the ones with the heart condition, but we struggle.  Luckily I’m not with the public as often as Chris.  So he is much better at it.  But there are times that I get tired of people asking me how Ben is.  Only because what they want to hear is “Fine”, “Good”, “Better”.  Most of the time . . . those are the answers that I reply with.   But then there are times that I give that answer and that person will say, “He’s cured?” or some version of that.  Then I turn around and tell the person the truth. “No, he’s not cured. No, this is not over. Yes, his problems are still there.” All of this is said with respect, but I don’t believe it is right to deceive anyone either.   Even when we get good reports, the problems are still there!  They haven’t gone away.  So he had a good visit with the cardiologist. All that means is that he doesn’t have to have open heart surgery YET. It IS going to happen.   A good report just means that his issues aren’t bad enough to intervene yet.  There are people in our life that the only answer we CAN give is “good.”  Any answer beyond that is more than they want to hear.   We respect that.  But what a burden that is for us too.  To not be able to tell the truth about our son when asked.

I write all of this to say that this journey is not over.  Ben’s health issues are complex and involve more than just his heart.  I will work hard to not burden every person I meet with my troubles.  And if you happen to ask me the question “How is Ben doing?” and you get an ear full, I’m sorry.  I’ve just said “Good” one too many times that day and needed to share the truth with someone.

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Quote of the Day

After a particularly difficult day with homework where Be had been melting over the difficulty of his work.  He just knew that he wasn’t “smart enough to get it.”   We decided to separate Ben from his homework, so he went to take a shower and get his pajamas on.  After he was finished Ben come downstairs and says to his Dad, “I’ve decided to man up and meet my obligations.”

And then he sat down and did his homework.

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She raised $76.50 for the Montgomery County Emergency Assistance.  Not bad for three hours of selling lemonade!  We are so proud of her!20130902-231336.jpg

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About a month ago, Ainsley started begging me to let her do a lemonade stand.  She is a sweet girl, but she doesn’t realize that we live on the worst street for a lemonade stand.  There are no sidewalks, no one stops, and the cars go 80 miles an hour down the street.  I love her, but I knew that she would work so hard on putting it together and would be utterly disappointed if no one came.  So Dad and I talked to her about a lemonade stand.  The reality of it and what we all would need to do in order to make her lemonade stand a success.

This is not the world that I grew up in (of course, I lived on a cul-de-sac so I had a terrible street for a lemonade stand too).  This is the era of Facebook.  As much as I don’t like it (and am not on it), there is great value in it.  First, we helped Ainsley pick a charity to give the money too (Montgomery County Emergency Assistance).  Then we all discussed what all needed to be done in order to prepare for the lemonade stand.  Even Madie and Ben helped.  She had Madie helping her create a table for the stand and decorating it with duct tape.  Lastly, we asked Daddy to help with advertising.  He put it up on Facebook and the rest was magic.

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Ainsley worked for a week on this sign.

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It was great turn out! We told Ainsley that it is unusual to have a line at your first lemonade stand! She was so thrilled that every one was there.

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Look at that smile. It is contagious!
By the way, she was up and dressed by 8am. She wanted to look pretty, so that everyone would stop and buy from her!

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She is sitting there telling me that she is sure that she is going to reach her goal today!

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Look at the crowd!

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Chris is telling a story. And we wonder where Ben gets it from.

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Ok. The friends have left. It is HOT! She is sweating and worried about getting more customers.

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Ainsley “manning” her stand. Ready for the next customer.

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Yeah! Another customer!

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She waved to every car that passed by!

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Madie is in 6th grade at Bozman.  Ben is at his last year at Wilkinson in 4th and Ainsley is in 3rd grade!  This is their first day of school picture for 2013.  Don’t they look grown up!  Slowly but surely they are growing up.  The first day of school was terrible . . . for me.   I missed them terribly.   I missed the routine of summer, but I do look forward to this school year.  We are already filling the calendar up quickly.  Between school,  Girl Scouts, Boy Scouts, church, Honor Orchestra, D.I., gymnastics, and everything else we are going to be VERY busy this year.  Plus Ben is still debating on whether to join karate or play baseball.  Yikes!  It looks like I need to work on my organization skills to keep everything in order to have dinner on the table, homework done, and every one to bed on time.

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First Day of School 2013

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Ben and Mrs. Bales – 4th

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Madie and Mrs. Petty – 6th

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Ms. Prebish and Ainsley – 3rd

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So we lined the hallway with all of the school supplies that I had purchased over the last few months.  Madie organized them.  Then we went shopping.  It is an annual event that the kids come upstairs in the hallway outside my craft closet (where I keep all of the supplies) to then pick out everything that they want for school.  Most of the time they don’t even get to go with me to the store, so this is the first time that they get to look at it.    They love doing it!  And this year I managed to get everything put together several days before we needed it!  So there wasn’t a rush the night before to make sure that they had everything on the list!

 

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So I have finally succumbed to Ainsley’s request and have signed her up for gymnastics.  She loves it.  My pictures aren’t that great because I had to take it through glass.  But she didn’t care.  Hopefully this will tone down all of the cartwheels and flipping on the furniture.  Maybe?  I hope so, but I doubt it.

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