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Archive for June, 2015

Fingers crossed.

We will be going home tomorrow. After Ben threw up all of his morning medicines, they decided to take him off of one diuretic which means that they wanted to watch him one more day. So we have tried to make the best of it. 

 
We went and played arcade games on the 16th floor. I taught him how to play space invaders.  Poor guy thought that it was a little antiquated. I told him that it was pretty advanced technology for me when it came out! So he had some fun before we came back to his room and got ready for bed. 

So fingers crossed, we will go home tomorrow morning! 

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At the moment we are stuck here for another day. The doctor thinks that with Ben throwing up all of his medicines this morning that it would be wise to stay one more day.  So after the initial disappointment, we are trying to make the most of it.  

 

There is still a slim chance that we might go home but just in case we are here for while he is building some Legos. 

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So all of the signs were good for us leaving here today. We had an echo and X-ray. We heard the X-ray was good enough for us to go home (still a little fluid on the side view). And then . . . 

He threw up. All of his breakfast and all of his meds. So now they are discussing whether this prevents us from going home today. And of course, we still haven’t received the echo report yet. So we pray for a good report and that the doctor will allow us to go home. 

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Long day. 

There is not much to report today. We had a ton of visitors so between the visits there was eating and napping and not much else happened. We were still stuck on this floor until 6:30 tonight when he doctor ordered Ben off of telemetry which meant Ben finally was able to leave the floor. We did do a lot of walking. Ben walked 1.74 miles today. For a boy who just had his heart reconstructed less than a week ago, that is awesome! 

We had a pretty disruptive night last night. He was woken up about every hour for one thing or another. We hope that tonight will be a little less hectic. He is no longer in any I.v. medicines. We requested that he get a break for respiratory therapiat to give him a break. So hopefully a little more sleep will help him out. 

We were finally able to make it off the floor to the 16th floor for some fun. 

  
Plus some awesome visitors.

 
Lots of volunteers who brought around a video cart, a cart where he could pick  free toy, and the best . . . The snowcone cart. 

  The sugar rush was the best part of the  day. He was more like his old self again. 

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Quote of the day

A friend brought dinner to the hospital last night for Chris and I.  Wonderful hamburgers with bacon and fries that smelled divine when they walked in the room. Ben can eat anything he wants, so I asked him if he would like to eat some of my burger.  His response . . . 

“I don’t want to die today. Thanks.”

Good point, boy. Probably shouldn’t be filling his body with all that grease after he just got his heart rebuilt. But that bacon sure did look good. 

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   “Daddy, don’t make me laugh. It hurts.”  

So we are finally settled in our room, Daddy came up to visit. Ben wanted to watch a movie but didn’t care what we watched. So in honor of Daddy, we watched “Ghostbusters”. Listening to Daddy quote his favorite lines throughout the entire  movie made us all laugh. It was good to see Ben laugh. 

Now the goal is to regulate his blood pressure, clear his lungs, pass his culture, etc., etc. Nothing to it!

 

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We received the official word this morning that we are being moved from ICU to a regular floor. But it is 2:00 and we are still here. Apparently there are no beds open on the 15th floor so we have to wait until someone is discharged. Ben and I offered to help someone pack and go home but they said no. Bummer. So we sit here and wait. Or sleep if you are Ben. 

In the meantime, the girls have been having crazy fun with their Aunt Debra. She took them on their first roller coaster ride. 

   This is the before picture where they are a little scared. 
   

I think Ainsley is in shock and may never go on a roller coaster again.  

  
But at least they had fun and got to do something to keep their mind off of their brother. Although I don’t think they wanted to switch emotions from concern to absolute terror! But I love it. I told Aunt Deb that she was now in charge of all high adventure rides!

  

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