The Puddles

So this has been a week of medical visits and getting back into the school routine, just at home instead of school.

On Monday, Ben saw the neurologist.  The doctor was very nice and Ben feels confident that this man will help him, but it was still a discouraging visit.  This doctor thinks that all of Ben’s dizziness is caused by his heart.  I told him that his cardiologist believes that his heart problem is exasperating the issue but not the cause.  He said that all of Ben’s descriptions of his issue sounds heart related.  Very nicely, I told him that there are days that I want to take all of Ben’s doctors lock them in a room and tell them to figure it out.  He said he understood and smiled.  He said we will get to the bottom of this.

The good news is that he is part of the Memorial Herman system.  So he is presenting Ben’s case to his fellow physicians at that hospital.  So hopefully now we will have great minds at Texas Children’s Hospital and Memorial Herman Hospital trying to figure this boy out.  That is the only good part of that day’s visit.

On Wednesday, Ben had a series of MRIs done at Texas Children’s downtown.  The poor guy was in the machine for four hours and was suppose to be in for more, but they figured out how to consolidate some of the tests so he had four MRIs instead of six. But being in that loud machine all of that time and having a magnet spin around you, really messed with his head so he couldn’t even walk the rest of the day.  Of course, he got to wear special goggles to watch movies and I got to count the ceiling tiles while holding Ben’s hand and foot.  It is hard being inside that machine for so long.

On our way out of the elevator when we finally finished at 6:30, we ran into Dr. Altman, his cardiologist.  She greeted us and asked how it went.  She said she had stayed around while Ben’s imaging was being done (she was the ordering physician) to  make sure that it all went well.  Ben told her that he was really loopy!  She told me that she isn’t sure what to wish for regarding the results of the MRI. She doesn’t know if she wants them to find something or not.  We told her that we are hoping for an answer but only an answer in which the solution is medication or time.  She said she would hope for that too.

But it has been a long week.  Many frustrations.  No answers. But we still have hope that a solution will be found and Ben’s life will return to normal.