The Puddles

We are currently sitting in a room in the Emergency Center at Texas Children’s Hospital waiting for the doctors to admit Ben to a regular room for 48 hours of observation while they try to figure out where this fever is coming from. 

For the last two nights Ben has run a fever. Only in the evening around the time to give him his medicine at 9pm. Then we would spend the next hour taking his temperature, retaking his temperature, changing thermometers, taking it both auxiliary and orally, trying to cool him off to see if he was just overheated, praying that this was a fluke, and then finally resolving to ourselves that the fever was real.  Then we would give him some Tylenol to fight the fever and by morning the fever was gone. We called the cardiology on call doctor both times, but it was our pediatrician that really helped. She called TCH and spoke to the attending cardiology doctor in which both doctors agreed that this was not normal. So they sent us downtown to get checked out. 

So far all of the tests have come back as ok (no changes on the echo, EKG, urine, etc since we left the hospital two days ago).  The doctors have no idea why he is running a fever. He did run a fever in the ICU several days after surgery, but all of the tests from that period came back normal and they stopped the antibiotics. He didn’t run another fever again in the hospital. So hopefully we will get some answers.

Ben is mad that he is back at the hospital. He doesn’t want to be here at all. I can’t say I blame him. Chris is at home washing clothes and repacking bags, so Ben has clean clothes to wear at the hospital again. He will join us tomorrow at the hospital. We pray for a quick resolution to this problem, so we can finish this recovery at home.