We heard bitter sweet news yesterday from Ben’s cardiologist. The surgeon agrees with our doctor that Ben needs surgery soon in order to try to save his aortic valve which we are happy to hear. We were not excited about the fact that Ben would have to have an artificial valve. The bitter news is that they found additional malformations. The sinotubular junction (an area of the aorta directly above the aortic valve) is also narrowed. Although we were knew this news was coming, today is the day we have to start living in reality and face the upcoming drama that will face our BenBen and our family.
We are stunned and still in a state of shock today. Life must still go on. The kids still have to go to school. Chris still needs to work. I still have a household to run (or reclaim). I hope to find the will today to start preparing. Like a mother in her ninth month of pregnancy, I too must start to “nest.” To prepare my household and my children for the chaos that will soon erupt.
We are hoping that Ben will be able to have his surgery in a month. Enough time to get a good start to school and enough time for the major drama to subside before the advent season approaches. I cannot wait to be on the other side of this. I look forward to the day a year from now that I will say, “I am glad that this is all over!”
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