The Puddles

We started the morning with an echo of Ben’s heart.  According to Dr. Altman, Ben’s aortic valve has increased its leaking.  It is still considered mild to moderate and there is not a reason to intervene surgically yet.  We go back in six months for another echo and visit with Dr. Altman.  She is going to meet with Dr. Feig, Ben’s nephrologist, to discuss weaning Ben off of some medicine.  We should have some of those answers in a month.  Lastly, the doctor told us that Ben has restrictions again this summer.  Her words, “He can be outside as long as he is in water.”  So Chris and I are trying to figure out how to apply that to Ben and yet still let him be a boy.  Baseball? Boy Scout Camp? Recess? PE? Church Camp? All very important things that Ben REALLY wants to do.  So we got to figure this out.  Soon enough.  Luckily it is not too hot right now.  It is downright gorgeous.  So no worries yet.

We followed our visit with another blood drawn with ice cream rewards and then went on home.  It’s been a long day.  So tired. We had good news and bad today.  But overall, very acceptable news that we can deal with.