So here is the news from our current homebase of Texas Children’s Hospital. . .
The doctors still don’t know why Ben is running a fever, but they seem less concerned with the why and more concerned with dealing with the stuff that they can control (blood pressure, ins/outs of fluid, etc.) . So they are increasing his blood pressure medicine and decreasing his lasix medicine. The good news is that they have taken him off all of his antibiotics. No more iv medicines that keep him chained to his bed for hours. The doctors decided today that they want too how high his fever will go without intervention. So he is now running a low grade fever most of the afternoon. We will see what happens.
In the meantime, Ben is building Legos. Lots of sets.
And . . . After almost two weeks in the hospital we figured out how the movie thing on the tv works. We watched “Captain America.” Then “Avengers.” And then “Thor:the Dark World.” Do you see a theme?
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